With little resources going to those taking care of developmentally disabled enrollees in the Medicaid system, the most vulnerable among us are left with undpendable care.
Introduction
More than half a million people with intellectual and developmental disabilities (IDD) and related conditions live in Texas. State law defines an intellectual disability as “significantly subaverage general intellectual functioning that is concurrent with deficits in adaptive behavior and originates during the developmental period.” People with IDD often face challenges and need assistance with learning, mobility, independent living, language, and self-care.
The term encompasses individuals with intellectual and developmental disabilities, as well as related conditions, and they can co-occur with behavioral health conditions as well. An estimated 35 percent of individuals with IDD are reported to have a co-occurring behavioral health condition. 4 Many of these individuals will migrate across various programs and services throughout their lifetimes as their ages, needs, and availability of services change.
In the last fifty years, federal requirements for providing services to individuals with IDD have shifted from recommending “custodial care” in an institutional setting, to supporting “active treatment” in a community-based setting. As the IDD client and stakeholder community began to focus on providing care to individuals with IDD in what is commonly referred to as the “least restrictive setting,” more and more of these individuals sought to leave institutions and live and work in their communities. These changes expanded services from those addressing basic needs and safety concerns to providing personal development plans that included supports for individuals to achieve their desired personal outcomes...
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